Family Educational Document

Posted: September 8th, 2021

Note: This is a Powerpoint presentation (Does not have to be voice over)
Sources for citation : Https://medlineplus.gov/genetics/condition/down-syndrome
https://cmdss.org/parent-guide/

Competency
Design nursing care strategies which incorporate genetic and genomic risk factors.

Scenario
You are feeling passionate about developing information to share with your clients and families that have positive genetic testing results. A young couple approaches you concerned that they may have a child with Down syndrome as both the male and female in the relationship have siblings with Down syndrome. You decide to create an educational document that supports the family in their search for more information.

Instructions
Describe educational information that a couple may need to know before the birth of their baby. What testing can be recommended? How is this testing done and when in the gestation?
After birth, what resources can be offered to this couple to care for their newborn with Down syndrome?
List and describe resources this family may access now and into the future to support care for their child with Down Syndrome into adulthood.

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